Quote:
Originally Posted by Betsy859
Hi Damon,
I've been in NYC celebrating my daughter's 25th birthday, going nonstop with NYC marathon and party, theatre, dinners, Knicks Wizards game, and shopping so been out of touch. Reality hits Friday when I go home.
I'm so happy that you've been able to get off some of these IMHO horrible meds.
I'm on relatively low doses of Miraplex (1.5mg) and it's hard now to tolerate the side effects on some days. It's different on different days. Not sure why. So I see BDS in my future but hoping something less drastic can be done in the future. I have the utmost respect and admiration for you and the many others who have undergone this procedure. It freaks me out watching this procedure on YouTube while people are AWAKE. So, I'm happy, from the sounds of it, that you are doing better and able to lower your medication dosage. How is your mobility doing? Is that improving? Are you driving?
As for the diet, It sounds like we are eating the same things. I think the diet I'm on may allow more carbs 50-60 gms per day but I really don't count. I know what to eat and most of the time stick to the plan. Yes, I've read the same literature posted on this forum about this diet being neuro protective but that's what Dr. Perlmutter claimed in his book; that's why I started following the diet.
It gets easier and the desire for all carbs gets less and less, at least for me, the longer I've been on the diet. Even in NYC the past week I've followed the diet except I'm eating more fruit and less vegetables and definitely a lot less organic than when I'm home. But, no weight gain, of course between the hotel treadmill and all the walking outside that helps.
Please keep me posted on your diet and DBS progress. I'm cheering you on!!
I'm curious about one thing, is this weight gain just a temporary thing with DBS or is it different with different people or is it something you have to learn to live with?
All the best,
Betsy
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Hi Betsy
Weight gain in DBS is probably different degrees . Mine seem to have leveled off. I am stuck with 229s lbs. My MDS stated 3 to 6 months and it may become stable. Prior to surgery I was to busy worrying about walking and symptoms of
caused by the meds mainly paranoia. Not being able to walk burns calories as do dyskinesias . After DBS there is constant stimulation where the metabolition
becomes stable probably lower. I am not sure what caused the excessive appetite but I have it under control. I try to eat healthy while watching calories
I use the nutribullet for veggies and fruit. I was scared to have DBS. It really is not as bad as it sounds. It does not hurt (mild discomfort). I am due on Dec 18 for my 4th programing. I have only "on" time. The ability to drive has been renewed. The only discomfort is a heavy feeling in my legs which will be targeted at the next programing. The meds have been reduced by about 40%. Congrats on your daughters 25th birthday. To sum it up, when the ability to take care of yourself is gone and the meds stop working as they use to, DBS will enhance your quality of life.