Hi,
Sorry you are having muscle problems.
The best SLE test out there is done by Exagen "AVISE SLE + connective tissue 2.0". What it says on there site, the doctor should only need to do the ANA once after it comes back positive, follow ups are with some of the antibodies like EC4d and AntidsDNA.
The test is done in tiers, if ANA tests are positive, the lab will test for the additional antibodies, then they rate the levels of the tier 2 tests for overall results.
Jon