I have not posted much but I am a frequent visitor. However I am unable to hold back on my frustration any longer. I, like most CRPS patients, live in a true hell most, if not evey day.

I started with CRPS in mt right leg and it has since moved to my left leg. You mention pain of a 1-2/10 after walking around. I can no longer fit into normal shoes becuase of the swelling and the pain due to having something touching my feet.

As you can tell by my name I am a nurse. Because if this horrible condition I can no longer perform my job. CRPS has taken away one of the things I use to define myself, something I worked hard to become.

You speak of your foot being pink/red sometimes. Both of my legs from the knee down are eith purple or red at all times.

Some days I have to force myeslf to take a shower becuase I know the pain it will cause. I am a woman who cannot shave her legs becuase of the pain. This would not be an issure if I could wear clothing covering them, but once again having things touching my legs causes extreme pain.

You mention that you doctors are experts in CRPS. How many journal articles have they written? You cite articles frequently on here. i frequently use Pub Med as a starting point and I am curious as to where you obtain you information. One thing I have learned during my own experience, as well as my husband's who hold a doctorate in microbiology, is that if you look hard enough you can always find something that supports your beliefs.

I am not trying to be rude or come across like I am attacking you. I Just want you to realize that many of us have had to fight to get our diagnosis. If you ask any physican that is familiar with CRPS what they consider is the primary symptom is, they will say pain, extreme pain.

I just ask you to be mindful when stating you pain is outside the normal parameters of injury. Many of us would love to have our pain be a 2/10, even for one hour. CRPS has caused major life changes to many of us and our families.

Sorry for the long post but I felt I needed to share what I am feeling.