You bet there are times of grief when we are DX'd with something. It isn't just RSD, it is the whole of medical problems. When they are severe, no matter the condition, grief plays its roll. Some times part of that grief keeps with you even if you are over the worst of it.
I lost my long blond hair due to alopecia in my 20's. I am now 64 and I still miss my long blond hair. There still is a grief for what I lost.
Keep that close circle of friends and support. It does help when we hurt. Glad you found Neuro Talk. You will find many loving and supportive people. ginnie