Member
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Join Date: Jan 2014
Posts: 124
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Member
Join Date: Jan 2014
Posts: 124
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Do you have chronic problems due to slit ventricles? Some people are quite stable even though their ventricles are slit on imaging. My daughter has slit ventricles and her pressures are slowly increasing, she over drains and has poor elasticity so we manage that by upgrading the shunt system (no asd at one point due to serious under draining and low pressure, later needing asd, then replace asd with low flow valve when that wasn't enough along with increasing the settings on her programmable valve as she can withstand it). I also don't allow the surgeons to forget that she has already not had enlarged ventricles at the time of a shunt obstruction so they don't depend on imaging but look at her symptoms. We also keep an eye on hydration as it doesn't take much to throw her system out of balance.
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