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Originally Posted by NurseKris
I have found through my experience in health care and
now as a patient that both subjective and objective data is crucial. You
mentioned increased sweating as noted by PT, this is subjective. If you had a
QSART test, also known as a sweat test, and the results we positive that would
be objected.
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Fair point. I'll look into it.
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What scares me more than anything is knowing there are physicians that would
give this diagnosis without properly ruling out other conditions. Are you
diabetic? Have you been tested for autoimmune disorders?
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I don't know if i'm diabetic. I have worried about this but unless I have been
diabetic for a long time it doesn't make sense to me as I haven't had any changes.
I haven't been tested for autoimmune disorders, i'm not even sure what that is.
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You mentioned bone loss, which is atypical for a person of your age and
activity level. I would wonder if your delayed healing time is a result of the
noted bone loss. I have broken many toes during my 13 years of playing soccer,
so I can relate. I do remember being too stubborn to rest and let it heal
before getting back on the field. The healing time was so varied from weeks to
months, depending on where the break was and what treatment I received.
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I didn't immobilize the foot properly at all. I wore crocs and walked on my heal, for
3 months untill i got the immobilization boot. I made all my doctors aware of this.
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I noticed you mentioned Toledo a while back, and I am in no way suggesting that
the physicians are not qualified, but have you thought about going to the
Cleveland Clinic. Before I considered attempting a more invasive procedure I
went to the Clinic for another opinion. Dr Stanton-Hicks is an considered an
expert in CRPS and is one of the authors in articles you have mentioned. I saw
both him and Dr. Bruce Vrooman, another well published physician, and the
examined me and went over all of my test results and physician notes. It was
after seeing them, 5 months after my official diagnosis, that I accepted the
the CRPS diagnosis.
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Thanks for the recommendation. I'll have to look into this. I'm sure it would
be out of network, but the cost might be minimal compared to the gain.
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In my honest opinion I would be a little hesitant of doctors who aren't more
conservative in their treatment. Refresh my memory please as to what was done
before the nerve block. I would suggested desensitization therapy, including
mirror therapy.
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I updated my extended bio with my history of symptoms.
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One other thing is I have a huge problem with the word "normal" being used in
medicine. As I would tell my patients what is "normal" for me may not be
"normal" for you. I believe that when we think that what we are experiencing is
not "normal" we often get fixated on fear of not being "normal".
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I don't know. I don't know anything about what falls into the range of normal
healing for a toe fracture. I had assumed that if i were anywhere close to that
then my ortho wouldn't have refered me to another ortho who would then promptly
gave me a nerve block.
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Sorry for such a long post.
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No need to apologies for a long post, your helping me. Time, effort, stress on
top of everything else you have to deal with.