Jon,

I'm glad to hear you are moving toward a more fleshed out diagnosis. I was wondering, do your symptoms rule out any of the diseases that your polyneuropathy can be caused by?

I don't have symptoms like that, my feet get cold but the sensation is not what I'd have called cold pre-PN- I just know it means it now.

I do have issues with heat which seem worse. The extra cold temperatures plus young kids has meant turning the heat up. I'm pretty sure 65/68 while in shorts and a t shirt should be comfortable. Some days I feel like I am on Dante's Inferno: The Experience. Thankfully there are still moments and even days where that is not so.

I hope you find solutions and answers.

My best,

Another no 'H' Jon