Quote:
Originally Posted by damon4309
Hi Betsy
Weight gain in DBS is probably different degrees . Mine seem to have leveled off. I am stuck with 229s lbs. My MDS stated 3 to 6 months and it may become stable. Prior to surgery I was to busy worrying about walking and symptoms of
caused by the meds mainly paranoia. Not being able to walk burns calories as do dyskinesias . After DBS there is constant stimulation where the metabolition
becomes stable probably lower. I am not sure what caused the excessive appetite but I have it under control. I try to eat healthy while watching calories
I use the nutribullet for veggies and fruit. I was scared to have DBS. It really is not as bad as it sounds. It does not hurt (mild discomfort). I am due on Dec 18 for my 4th programing. I have only "on" time. The ability to drive has been renewed. The only discomfort is a heavy feeling in my legs which will be targeted at the next programing. The meds have been reduced by about 40%. Congrats on your daughters 25th birthday. To sum it up, when the ability to take care of yourself is gone and the meds stop working as they use to, DBS will enhance
your quality of life.
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Hi Damon,
All sounds good I've been cheering you on from afar! Thank you for that info on the BDS procedure being fairly "mild" that's encouraging. How often are you getting programmed? And do you go back to the hospital or to a doctor's office? IF I do this Im thinking about the procedure being done at Hopkins but it's 75 minutes away so was wondering about the programming. But all that will be covered by the hospital when I get screened to see if I even qualify for the procedure. One of my neurologists is encouraging the procedure because of my resistant tremor and my intolerance for these meds. At this point I'm going to enjoy the holidays and worry about it in the new year. I see the neurologist Tuesday so will talk to her more at that time.
Are you sleeping better? I used to sleep like a baby until PD. Now I can't sleep at all and often have to take naps during the day. I take a 3mg melatonin every night. Don't really want to start on anything stronger at this time.
Good luck with your next programming and continuing diet. It makes sense that appetite levels out after your body adjusts to the DBS.
Good luck and all the best,
Betsy