Annie,
Thanks for that list, there are a couple of things on there that I had not seen listed before.
Also I am interested that you said that
Quote:
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When I go out and run errands, I will be pretty wiped out for the next two hours or so. The next day I can be generally weaker than I was before running the errands. Day two I call "two day payback." I don't know why the second day is worse, but it tends to be, at least for me.
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Does this apply then even if you are on meds. Now that I have Mestinon I was thinking I could start rebuilding my strength that I have lost over the last 10 months. But a day out (now possible) does leave me feeling pretty tired the following day. Do you think that is something that we have to live with or is it just that I am 10 months 'out of condition' and pushing too hard?