When you don't have positive test results yet, neuros will often begin with a lower dose of Mestinon to see if you respond to it. They don't want to overdose you, in case you don't have it.

Are you having any side effects, such as increased saliva or diarrhea?

Mestinon kicks in after about 20 - 30 minutes. It lasts for about two hours after that and then wears off at about the 2-1/2 hour mark.

Too much Mestinon can cause a cholinergic crisis, which means too much acetylcholine going to the muscles.

Too little Mestinon causes a myasthenic crisis (too little acetylcholine), which you might have already had!

The fact that it's working is probably not a placebo effect! It does work on some CMSs and LEMS, too.

You could try a banana dipped in some rice protein powder to get the protein your body needs. They have a lot of protein powders to choose from at iherb.

http://www.iherb.com/Country-Life-Gl...3&sr=null&ic=2

When do you see the neuro again?

Annie