Hi, Barb. Glad you finally got the results.

About 7% of MGers are "modulating only." I'm one of them, too.

I don't mean to alarm you, but a modulating result that high should prompt your neurologist to immediately order a chest CT scan to look for a thymoma, cancer of the thymus gland.

In some cases, a removal of the gland can cause remission. Although, that usually doesn't happen. But you do need to know if you have cancer or not or if the numbers are high only because you don't have treatment yet.

I really hope your doctors will help you right away now. And, yes, it would be unlikely that you don't have MG with such a high result. Welcome to the club, I guess. They will probably want to do a SFEMG or other such test, too (finally!).

Annie