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Join Date: Jan 2009
Posts: 140
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Member
Join Date: Jan 2009
Posts: 140
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Im going to keep bumping this thread because its important to me that the valuable information alena has provided along with my same issue it will hopefully help someone else one day. Since i started with the exact visual issues as alena i have additional symptoms that have appeared. Alena was very creative that she created a visual simulation of what she was seeing that was grabbed by the migraine aura foundation based out of Germany. Her posts alone have given me hope abd confirmation this was not psychosomatic. Her gif is called autokinesis. Anyways, since i started ive noticed coordination problems, more noticeably in my dominant hand of course. I have to try harder to coordinate writing and other movements. Proprioception has become an issue as my heels feel like they lose sense of the ground, almost like vertigo, but more sensational. Alena complained of this as well. Mris have been normal (including dye and of spine )as well and spinal tap, eeg, lyme testing, blood work, and paraneoplastic blood tests. Ive done nothing since April because it gets tiring and discouraging. Anyways, i suspect ataxia, perhaps recessive condition rather than ms or mg. Ms is much more common than rare genetic. ataxic disorders although ataxia is a symptom. I am having another mri soon with not much optimism. I also had extensive balance testing at the university of miami that indicated a failed caloric response and possible convergence disorder. Dont give up if youre an individual that comes across this one day. I hope i can find an answer to help others because ive seen others posting on other sites. They are not recent though. I do ask that if you're an individual that reads this and feels i dont belong writng on this forum to kindly move on to another thread. When i first posted on the ms forum i was asked by a nurse with mg to not post there because i could be upsetting other members. You dont know what me and this young lady are going through and im truly just hoping this is helpful one day. I wish everyone the best and i will folliw up in time. The benefit of alenas posts gave me atleast a timeline of her progress. Happy holidays.
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