I started to get better at the end of June. I have had partial remissions before, but they never lasted more than a couple of months. This one's going on five. Right now, I am close to symptom-free. I feel some muscle fatigue, but nothing like it used to be. I have not had a collapsing spell since June.

I didn't change my diet or take any supplements or new drugs. If I had gone gulten free, or paleo, or if I had started taking some supplement, I'd be a True Believer. But it would have been a coincidence.

You can read in one of my previous posts how I started shaking in June, and how my neuro suggested it was a psychogenic symptom, and how, to my great surprise, that turned out to be true--because just the suggestion that it was psychogenic stopped it in its tracks. I stopped shaking when I left his office, and haven't shaken since.

Were all my symptoms psychogenic? That's possible, but I don't think so. My best guess is that the symptoms of MG (or whatever I have) messed with my head, and caused some additional psychogenic symptoms in response, like the shaking, and possibly the spells of intense weakness. But I think the psychogenic symptoms were caused by my experience of the neurological disorder. I don't really know. That's just a guess. It hasn't escaped my notice that I started to get better from everything--not just the shaking--at the mention of the word "psychogenic." My best guess is that I do have a neurological disorder, but that many of the symptoms were psychogenic responses to the disorder, and not part of the disorder itself.

That makes some sense to me. MG is a weird and unpredictable disease. It comes and goes. New symptoms pop up and disappear. I went a year and a half without a diagnosis. I'm evidently susceptible to psychogenic symptoms (evidence: the shaking), so maybe MG is just the sort of thing that would mess with my head. In other words, all of my symptoms were caused by MG--but maybe some of those symptoms were caused indirectly, as psychogenic responses to the directly-caused symptoms.

I went to a psychiatrist with my story for help in figuring it all out. She wasn't helpful. She offered to treat me for depression and anxiety. I don't think I have depression or anxiety, and when I asked her why she thought I did, she had no answer.

I want to make it crystal-clear that although I had some clearly psychogenic symptoms, and some other symptoms that may have been psychogenic, I don't suggest that anyone here has the same experience as me. This is just me I'm talking about. Just because I'm susceptible to psychogenic symptoms doesn't mean anyone else is.

I stopped taking Imuran at the end of June. I took it for several years, and never saw a difference. Mestinon never helped me. IVIg doesn't seem to, either. I'm seronegative. I have only had eye symptoms briefly a few times since 2009, when I had my first symptoms.

So maybe I don't have MG at all. I was diagnosed by an MG specialist by SFEMG--he said the results were strongly positive, even though my local neuro had done two previous SFEMG's on me that came out "borderline." What to make of that? I have no idea.

I don't know what's going on. I'm well aware that all the symptoms could return at any time. I know this story isn't very coherent. I'm posting it here just to update those who have been so kind to me over the past few years, and maybe also to say that you never know what's going to happen.

Abby