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Originally Posted by septmystic
Hi - One of the worst things I have found with RSD is the non-support of medical professionals. It took 6 years for me to be diagnosed, test after test, attitude after attitude and finally confirmation. It started in my left hand/arm and face then moved to my right arm/hand. Both hands are effected now so I don't type long. But still, I am on 3 waiting lists for Ketamine (Any-one know a doctor?), one doctor will see me for 15k but he is far away and my current doctors say there is nothing they can do for me. Pain meds that barely touch the surface, no support and still a lot of attitude. Talk with people, search for help and reach out that is all we can do! Unfortunately, I have found that we must find answers ourselves. Don't give up! I made up a saying long ago that I think all doctors should adhere to...."For a man/woman to truly see, they must look beyond their own ego":icon_wink:
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For me 18yrs ago. I went to so many doctors and they kept saying it must be in your head even though you could see my right hand looked completely different. I finally got diagnosed a little to late and not before a different Dr. had put it in a cast. I am with you. Don't stop even if you have to go Dr. to Dr. You are the only one that knows your own body. I am on Medicare now so it takes longer for authorizations and certain things are not covered. LISAR624