I can't speak for others, but my life is fairly limited by MG. I can only use Mestinon, however.

There are many people who still work with MG. I would venture to say that most of them are on some kind of drug regimen. There really isn't an answer to your question as it relates to you and MG. It all depends upon what drugs work, what level of energy you expend daily, and how stable or not your MG remains.

Soda can go up into your nose! Bubbles tend to rise, so if you have trouble swallowing food and liquids, it might not be a good thing for you. It's really fun when water from a shower magically makes its way up through the nose.

I can't tell you what foods you'll have a hard time with, because what is okay for one person might not be with another. I can even choke on spit when I've talked too much or am really wiped out.

You might be "fine" while awake, but how are you while you're sleeping?! I hope you will see a pulmonologist once you're officially diagnosed.

When I had my crisis in 2005, I went to urgent care because I was much weaker. I hadn't realized the degree of weakness—the doctor said that I couldn't squeeze his fingers at all and I thought I had been doing it quite strongly. So you can get weaker relatively slowly and not notice it, while if you become suddenly weak you will.

Don't expect to become superwoman! Mestinon is only a helper drug and does nothing for the immune system (even though a couple of studies say that it does). The other drugs have varying side effects. You probably need to reevaluate what you can or can't do at some point.

I just hope you can see a doctor face to face to get questions answered! Writing all the questions down will help both you and your neuro.

Only you can decide what you can handle or not.

Annie