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Old 06-09-2007, 12:59 PM
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
Default Roxy, welcome!

IVIG? I couldn't live without it! I've an auto-immune mainly sensory CIDP. But the chemistry action/reaction of our bodies to ourselves is very similar.

Check out this part of this site...
http://www.neuro.wustl.edu/neuromuscular/maltbrain.html

For each person, how one is treated, either thru steroids, IVIG or plasmapherisis...it's up to the doc in charge and his philosophy and the patient's stage of neuro/myopathy and any other complicating factors.

Some folks with CIDP and MMN I know of receive short infusions as have you of 1 hour weekly. Others anywhere from 2 weeks to 6 months or more...or as needed.

The magazine called IG Living is a good resource about all the conditions IVIG is used for, and also info on how it's made. Should you haev trouble getting it, they can help too! Wonderful concept, a joint project of most IG manufacturers and home infusion providers. http://www.igliving.com/

Yes, this all does come and go! I wish like you it would GO AWAY more.

Hope this helps! - j
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