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Old 11-23-2014, 06:18 AM
juliejayne juliejayne is offline
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Join Date: Apr 2014
Location: Dordrecht, Netherlands
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juliejayne juliejayne is offline
Member
 
Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
10 yr Member
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I have to agree with Annie, and you have to remember that this disease is so variable, that each person may well have a different experience.

I too have read often that
Quote:
many people with MG can lead normal or near normal lives.
Well I would have to challenge that.

I am still without a dx, though it is 95% certain that I have some form of Myasthenia.
Whilst Mestinon, at the right level, gives me back an almost normal level of energy, having to plan the rest of your life in 4 hour chunks, is hardly Normal.

Also it has taken me 11 months before I could get meds. In those 11 months I have been able to do zero exercise. As a result I am now 10 kilos heavier than I was and out of condition. Working within the confines of MG, it is likely to take me a couple of years to get back to where I was... again hardly normal.

It will be different for everyone, if only your eyes or swallowing have been affected, then it may be easier, but as Annie said
Quote:
only you can decide what you can handle or not.
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"Thanks for this!" says:
lotusflwr952 (11-23-2014)