Hi, Lisa. Welcome.

Did you know that there is the MuSK antibody test, too? And being seronegative doesn't mean that you don't have MG.

It's not very typical for MG symptoms to come and go as you describe. Some people with congenital myasthenic syndrome can have that happen. Are there any diseases that run in your family?

If your "normal" is to be weaker than other people, and you have times when you are worse, it's possible to have a milder form of MG. MG can become worse with hormonal changes, heat, surgery, infection, lack of sleep, stress, and lots of other things such as certain drugs. Did you have anything happen during those "flares" that you can recall might've made you worse?

A Single Fiber EMG is what most MG experts will do on clinically weak muscles. A negative EMG or repetitive nerve stimulation test does not mean that you don't have MG.

Do you have double vision or droopy eyelids? Have you taken photos of your face to see if you do (same lighting, face angle, etc.)? Do you have any photos of yourself during the times you had those episodes of weakness?

If you have DV or ptosis, you could see a neuro-ophthalmologist and have them assess what's going on.

Have you had your thyroid or B12 checked? Have you been tested for celiac disease or Lymes?

I can't say if you have MG or not—only a doctor can. Maybe you should check in with your primary doctor to see if they can further evaluate the situation.

In the meantime, write all of this down, along with any symptoms you might be having. Look for any patterns.

I hope you can find someone to help you figure it out!

Annie