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Old 06-09-2007, 03:00 PM
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Roxie2007 Roxie2007 is offline
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Join Date: Jun 2007
Location: Houston, TX. Orig.from Lincoln, NE.
Posts: 517
15 yr Member
Roxie2007 Roxie2007 is offline
Member
Roxie2007's Avatar
 
Join Date: Jun 2007
Location: Houston, TX. Orig.from Lincoln, NE.
Posts: 517
15 yr Member
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HI Melody,
My B-12 level was 786 the last time I had it checked, last month. Quest Lab uses 200-1100 pg/mL as the reference range. So I thought I was ok. Guess maybe it's not ok. I'll check into the Mythol b-12.
About the IC problem.......You sound like me! I went thru years of hell with severe bladder pain with no real pain meds or bladder meds. When I moved from Katy TX to Houston, TX I changed Urologists. I found a specialist in IC and he's fantastic! He said they don't use those old tests they used to use for IC.....now if it 'looks' like IC they treat as such. I didn't have the little purple spots in my bladder when it was tested but have every other symptom in the book. Now I'm on Elmron and Elavil and use the Oxytrol patch and I'm doing really well with IC. I still have to watch what I eat but I do anyway because of my gastric bypass. I also take Freeze dried AloeVera and that works like Elmiron to coat the bladder lining.
I know many dr.s have no idea how to treat IC.....it's sad this day and age! I belong to the ICN website and they have lots of great info and great people on there to chat with. I really enjoy it.
I hope you stay in remission from IC. I've heard that there's lots of people who stay in remission, that would be SO nice!
What state do you live in? Roxie
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Dx'd with Spinal Arthritis 09
Upper and lower Spinal Cord Stimulator surgery
Replaced IV port 09
Had surgery for IV port for IVIG infusions 07
Halo 360 & 90 procedure for Barrett's esophagus
Dx'd Chronic Axonal Neuropathy & Myopathy June 07
Dx'd IC May 2006 (after suffering for 25+ yrs!)
Gall bladder surgery Aug. 2004
Gastric Bypass Dec. 2004
Dx'd: Barrett's Esphogus July 2004
Bladder surgery 2000
Dx'd: IBS 2000
Hysterectomy (fibroids) 1999
Laminectomy 1989
Dx'd: Degerative Disk Disease 1989
Cyst removed from my ankle -twice 1986
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