Hello,
I found this old thread googling CRPS and Mayo and was struck by the identical nature of our symptoms. Mine developed after foot surgery 3 a few months ago. Foot flares hot and red sometimes when it's been down too long , gets cold and generally doesn't control it's blood flow and temperature well. I just saw pain mgmt and they said it has autonomic dysfunction but did not think CRPS since symptoms stop when I elevate or cool the foot down. How and what did you end up doing? I am Concerned since others on here seem to have CRPS with similar symptoms initially.
thanks a million, this sucks...
littlepaw
Quote:
Originally Posted by WolfLarsen
I was diagnosed with RSD by a foot & ankle specialist. He first tried some simple physical therapy treatments but it hasn't worked yet so I'm wondering what course I should persue next.
It sounded like I should go to a neurologist, who then might refer me to a pain clinic, with anesthesiologists specialising in pain management. I'm curious to hear what advice others might have on this- on who to see and what treatments are worth considering, etc.
I want to keep costs down- I don't have insurance or a job right now- but I also want to get this cured.
Also, whats the best way to find specialists who are sufficiently knowledgeable about this? It seems to be pretty critical with RSD. This went undiagnosed for months until I finally found someone who figured out what it was- my primary care guy ranted about how I was a hypochondriac and wasting his time.
Right now I live 50 miles from Sioux Falls, SD, but staying with relatives is an option- I have some that live about 90 miles from the Mayo Clinic.
Anyway, any advice anyone has is surely appreciated!
If anyone's curious this is kind of where my RSD is at right now:
My RSD by the sound of it seems less severe than may cases. Its mainly very weird about temperature. If it gets below the low-mid 80s I have to bundle my foot heavily to keep it warm, and it tends to become very stiff and immobile. But if it gets too warm, which is pretty frequent, it gets red and inflamed and very uncomfortably hot. I wouldn't say it hurts much except if its really too hot (burning) or too cold (aching), although its extremely touchy and easy to injure by overexertion or walking on it when stiff, etc.
I had been able to walk on it pretty well until recently a physical therapist did some ill-advised stuff to it and messed it up so bad I was crutches only for a week, which was apparently enough for the RSD to worsen dramatically just from inactivity and I now find my foot so stiffened and touchy that more than a few steps walking on it seems risky. It also abruptly spread to my other foot, which I had slightly injured, and for awhile I was getting an exaggerated pain sensation in addition to hot and cold, although its tapering off a bit now.
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