Hello Barb,
Try not to be too hard on your neuro. I think there is truth in his statement that some people don't know they have MG. I didn't, until my symptoms got so bad I was sent to a neuro by my optometrist after he noticed my right eye was almost shut. My situation was similar to yours. I was diagnosed in 1992. At that time I was in my third year of night law school, with two sons, a husband and a full time job. My symptoms at that time were a droopy eye with problems chewing and swallowing. My neuro put me on mestinon and ephedrine (which you can't get anymore). My symptoms stabilized and I was able to finish school and practice law for 20 years. My MG progressed then, and I had to stop working.

Looking back, I think that I've had MG since my teenage years, but didn't know it. Always had a droopy eye and I couldn't participate in endurance sports. Heat has always bothered me.

I wish you luck, and patience on your new journey.