Sooo update..

I talked to my nurse today about a few things, one being my worsening spasticity since starting Baclofen. I told her I cut out my afternoon dose, so now I'm down to 1/2 a pill in the a.m. and 1 full pill before bed. She told me to see benefits I'd have to keep working up to 1 full pill three times a day, despite my worsening spasticity... that the pill wont work at such a low dose. Sigh. Caffeine will need to be my friend for a while, then I'll work at weaning off that.

She also said I should let her know if I want to start back up on Fampyra again and give it another go... seeing as 10 days into it I had my first and only very noticeable and profound relapse, I'm not in any way eager to start that again. Especially since it works on only 1/3 of people, and it's really expensive (though if it worked, we'd find a way to pay).