Hi workingmom,
I can relate to your story. Don't have any more dental work done unless there is clear physical evidence of a problem. I am two years in with this and am still convinced sometimes that something is wrong with my teeth. Well, I was just at the dentist again and my teeth are very healthy. Pretty messed up considering I feel like I have a mouth full of rotten teeth.
No one knows what to do with us. Keep looking for help and asking questions until someone listens. It took me a year and a half to find a neuro that understands this beast. I cried in his office because someone was finally listening, believing and understanding.
I have bilateral ATN. I have had 2 MRI/MRAs with nothing showing. I still don't have a proper diagnosis. Been told I have AO, AFP, ATN and MS several times. All tests clear. I hope that you are finding relief with your medication. Keep learning, reading and asking questions. Knowledge is power and we need to be our own best advocates with this!
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Originally Posted by workingmom
I've been living with whatever this is for over a year, but from reading a lot of posts on this site, I feel like I fit right in. I started off with a terrible headache that wouldn't go away, and a tooth ache. I went to Kaiser for the headache, but they sent me to my dentist. I went to my dentist and she  sent me back. I went back and forth from the neurologist, to the dentist, then to the root canal doctor, back to the neuro. It's never ending. The MRI didn't show anything, the root canal hasn't stopped anything, they want me to have another one, and I'm on meds every day for 14 months now. My face stings and burns all the time, but at least all the other horrible stuff seems to have subsided. However, having read through a lot of your posts, reliving all the horrible first months with this, I'm worried about the future.
No one that has treated me wants to label me a TN patient. Your doctors seemed to know what you had right away. I've been thinking that I was overreacting or making things up, but everything I'm reading is me. |