Barb,

I'm not trying to tell you what to do, but are you sure that you want to be hooked on steroids? There are other treatment options that don't come with as many side effects as Prednisone!

Starting on Pred OR Mestinon? That's weird. It's usually definitely Mestinon and the option of having Pred, too—not either/or. And did he sufficiently go over what the issues potentially are with Pred? Did he say to take calcium/vit. D while on it, plus an omega 3?

Yeah, I think you should consult with a MG expert. If you can manage to go to JH or Mass General, then go!

BTW, Pred can make someone with MG temporarily worse before they're better. Doctors throw that drug around as if it were candy. It can CAUSE other disease states such as diabetes, brittle bones, infections, etc. Most MG experts don't use it as a "regular" MG drug, but as a "rescue" drug when a MGer gets worse, and then has them on a fairly rapid taper. If they have a MG exacerbation or crisis, IV Solu-Medrol is usually given first, followed by tablets.

It sounds like this guy could care less about you. Or is he only lazy? Sorry, but this is all very silly. MG is a serious disease and you deserve a neurologist who is equally as serious!

Whatever you do, I hope you feel better soon!


Annie