Hi, WebJunk. Welcome.

Do you have a copy of your test results? These days, they usually do only the binding and modulating antibodies. Modulating antibodies are made up of modulating and blocking (so they say).

It doesn't matter what the other lab reference ranges are, only the one of the lab where they sent your blood to. Do you know their reference range?

A MG crisis is where you either can't swallow well, breathe in OR out well, or cannot move around well. It can be any or all of those things. We have 640 skeletal muscles and any number of them can become weak to the point of not being able to move it well or at all. For example, if you can't keep your head up due to weak neck/head muscles, that's an emergency, too. It could be a sign that your other muscles will become as weak as well.

Sometimes, the weakness can come on so slowly that you don't know just how weak you are. That's when it's the most dangerous.

When you get to the point of feeling very weak, weakness can progress quite rapidly. And it can become so severe that you need help immediately. So, it's better to seek out help before it gets that bad!!! Don't let that scare you, just get some help.

If you aren't doing well, the best thing to do is to call your neuro. If you are doing so badly that you can't do one or more of the above, then it's time to dial 911. It doesn't matter that you don't know whether or not you have MG!!! So many new "possible" MG patients have been in this position. If you need help, go in!!

If you do go in, tell the ER doctor that you are suspected of having MG. They should do a clinical exam, check your O2 AND pulse (pulse goes up as O2 goes down), blood pressure, and do an arterial gas and breathing tests if your breathing is bad. If your O2 is low, they need to do an ECG or constant ECG monitoring because a low O2 is bad for the heart (brain and other tissues, too).

You can ask your neuro for Mestinon, if he thinks you have MG.

Does any of that answer your questions? What more can we do to help you out?

Annie