Thanks for the responses.

I am fortunate enough to work in NYC, so I have an appointment with Dr. Russell Chin on 12/23. I researched my behind off trying to find my best shot at a diagnosis if one is available, and I think he might be the ticket. I've liked what I've read.

My ANA was negative, and back in April (for some muscle pain), more specific Scleroderma tests were run and also negative. Perhaps the doctor will want to try again.

I was seeing Dr. Daras at Columbia Pres, which also has a great neuropathy program, but it is so hard to get to see him-appointments are 3 months in between, and at this point when so much is unsure and I'm nervous, I really need a doctor to be more attentive. I am hoping Dr. Chin will be a good fit.