Thank you, Annie, what an amazingly concise and useful reply! I'm based in the UK. Both GPs at my local practice were reluctant to send me to a neuro - they sent me to my rheumy, for him to deal with it. I can't see my rheumy's until this Friday at 5pm and the next available (private) neuro that appears on paper as having useful experience is next Tuesday.

Because lupus is such an unpredictable disease, as is MG, I'm expecting reluctance to believe my symptoms when I see the rheumy's. If he doesn't believe me, then he won't send me to the neuro. So I have to again make an effort to convince him there is a case to answer here.

I know we are all different but we cling to any little hope - so your story about your mum recovering made me a bit calmer, thank you.

I get the urgency re breathing - good thing to point out, many thanks, I feel prepared now.

Autoimmunity is a pain, huh?