Yes, AIs are completely useless and should be abolished.

I wondered if you were in the UK. The system isn't perfect, and the neuros tend to be arrogant and condescending, but you can work with them.

The way you can tell the difference between lupus and MG is simple. MG is fatigable, meaning that the weakness and symptoms fluctuate. They can be relatively worse the more you do, and, again, relatively better with rest/drugs.

A big example of that is the ptosis/eyelid drooping you described. That is not related to lupus, but to MG. Same with the swallowing and breathing (that's variable, right?). So that is what I mean by fatigable (fancy word for "weaker").

MG is tricky, too. It can tank rapidly. It's not only the breathing, but the swallowing and moving. And it's very hard to predict.

Document all of this! Write it down. Take photographs of your face when it's drooping, etc. If you have a "witness" to all of this, that will help, too! That shouldn't be necessary, but I "get" how the UK system is after speaking to so many within it.

Okay, just take it easy!!

Annie