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Old 12-04-2014, 03:49 PM
ellsac ellsac is offline
Junior Member
 
Join Date: Dec 2014
Posts: 81
10 yr Member
ellsac ellsac is offline
Junior Member
 
Join Date: Dec 2014
Posts: 81
10 yr Member
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Thanks, everyone.

Glen-glad to hear you had a good experience with Dr. Chin.

I have done a lot of research, and have printed out the list of possible causes to show Dr. Chin, and have printouts of all my labs so we can mark things off as we go along. I hope he doesn't think I am pushy, but I am used to being in control of my health. I almost died about 5 years ago, when I finally got diagnosed with autoimmune Addison's Disease. It was a struggle to find a doctor who recognized my symptoms, though, because it is fairly rare, and even now, I have a good endocrinologist, but the day to day care is all in my hands. I can't shake the feeling that there is an autoimmune aspect to all of this.

Also, the high vitamin B6. The two doctors I spike to seem to write this off, but it is on every list of possible causes for neuropathy that I have seen. It may not be the whole picture, but I feel it could be part of it.

For the ladies in the thread-do any of you notice a correlation between when your hormones shift and an increase in symptoms? I notice mine are worse during a few days before my period, when my period is ending, when I ovulate. Seems whenever that stuff happens, I get an increase in issues.

I think the most disconcerting thing about all of this, is the feeling that it is spreading. I now get pin prick sensations in my tongue, throat, and sometimes eyes.

I also seemed to develop dermagraphia during all of this (no itching, just bright red lines when skin is rubbed and scratched-also no swelling).

It is all so confusing. Well, until the 23rd I will continue to try and remain level headed, and not be too afraid of the future. My hope is that the horror stories I read are far and few between (loss of ability to walk-more severe autonomic involvement). I don't know where this leaves my husband and I as far as having a baby-if it turns into something autoimmune, I don't know how I feel about possibly passing anything on to my child-I also fear pregnancy making me worse, and not being to care for a child properly. Sigh...
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"Thanks for this!" says:
madisongrrl (12-04-2014)