Hello larson_kelseym and welcome to NeuroTalk
You have mentioned ME several time in your post, are you referencing Erythromelalgia? Or ME/CFS?
This forum is the Multiple Sclerosis(MS) forum. If you have Multiple Sclerosis this is the forum you want.
If you have Chronic Fatigue Syndrome (CFS/ME) this is the link to that forum
http://neurotalk.psychcentral.com/forum12.html
There is also a General Health Conditions & Rare Disorders forum:
http://neurotalk.psychcentral.com/forum2.html
Best wishes!