I have questions about muscle spasms with MG. It is my understanding that MG doesn't cause spasms, but I have a terrible time with them and they are much worse when I am experiencing worsening MG symptoms. My legs in particular spasm but it can be my shoulder/arm muscle, etc. Many times they wake me up at night or keep me from getting to sleep. My entire leg will tense up and shake like a convulsion or siezure. They last for 10 or 15 seconds. Sometimes I can feel tension building up and have to keep stretching and changing positions to keep them from starting, but sometimes they start spontaneously. Sometimes I get a sudden pin prick like itch that will trigger them, or if my husband accidentally touches the bottom of my foot with his toes it will also trigger them. All my lab work looks good so I know it is not vitamin or electrolyte imbalance. I am still undergoing testing for MG and do not have a diagnosis, but I am on Mestinon and it does help my muscle weakness.
I'm just wondering if this is something that others have experienced.