Quote:
Originally Posted by Mark in Idaho
BeanJean,
Welcome to NeuroTalk
Wow, You have been through a rough few years.
First, Only one person here is a medical professional who will understand your medical terms. the rest of us need the layman's terms.
How did you get your last concussion a few weeks ago ?
What sport did you play ? hockey, LaCrosse ?
A positive Babinski is not a diagnosis. It's just a diagnostic tool. I have had a positive Babinski for over 4 decades. It is just an indicator of a higher neurological dysfunction.
I have had seizures from time to time over the years. My neuro called them trauma induced seizures. My EEG was inconclusive. I never had a grand mal (tonic-clonic) seizure, just absence (petit mal) seizures.
Have you had a Neuro Psychological Assessment ?
See that some of your listed symptoms are just subsets of other listed symptoms.
I doubt there are any tests that will show your injury except a few that are used in research. Even when they do, they do not help with a treatment.
I am lost as to what kind of help you are looking for. We are here to help you with day to day issues but it sounds like you have been pushing the limits with doctors. What kind of a daily life do you lead ? What kind of daily activities are you involved in ?
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Thank you for your prompt response! I used to play field hockey, but I also played lacrosse, softball and soccer; I was a jock, which makes things that much more difficult because now there are days when I can't even stand never mind go out and play.
My last concussion wasn't sports related, I was coming back from a conference and when I was getting my suitcase from under the GreyHound bus, I came up and smashed the back of my head on the metal door/overhang. The strange thing that I've noticed is that most times things get much worse the next morning. That night my head hurt a ton, and when I was talking with my friend on the phone I couldn't respond to the questions she was asking me, but that was about it. Then the next morning, I couldn't stand or walk. My legs would crumple beneath me.
I guess that's part of the reason I reached out to you all. I still have multiple days each week where I can barely walk and I need people to help/carry me everywhere. I'm only 20 and I fear that I've messed up my brain and I'm going to have to live with this the rest of my life, and that scares the crap out of me. Every second of every day I am terrified that something is going to hit me on the head- I live in a constant state of fear. It's like I'm afraid to live my life because there are so many unknown factors that I can't control, and with my history I can't help but think something bad is going to happen.
I am and always have been a Type-A person, so I have this unrelenting drive to find some kind of answer. I know that in all likelihood it will never happen, but I still want something to hold onto, a name, anything other than this limbo land. That's part of the fear, if I don't know what it is than I don't know if things are going to get better, how to make things better, or what will make things worse.
I'm sorry for whining right now, but this has really upset me that last few days. I don't think it's a coincidence that one of my classes is focussing on the nervous system this week.
In terms of day-to-day life, I have made enough progress that after 2 years of medical leave I'm able to be in college! Which is a huge deal! My schedule doesn't deviate much from other students, but I still feel different because of my seizures. Most days I feel "off" I describe it to my mom as being "seizury" and it's like things are lurking beneath the surface. I also get frustrated because my memory is shot and it is really difficult for me think clearly. I don't know, I'm just scared, confussed, and tired.
Thanks for listening,
BeanJean