Hi Trish. I don't post much, but reading about Steven's Prednisone taper I feel the need. Annie is correct, Steven's pred taper is at best INSANE. I was diagnosed 15-16 years ago and in that time I've been on and off Prednisone many times. Although it has been said that we are all different and react differently to medications, it took me about a year to come off 100mg. Looking at your prior posts, Steven was on 80mg two months ago and is now on 40mg EOD (every other day). Way too fast! I've had different neurologists since my diagnosis and no one ever went that fast. I understand the need to get off pred due to the long-term risks (I'm dealing with a few), but not to the detriment his current health.

I also take Imuran (200mg) and mestinon (60mg) 2-3 times a day. I'm currently on 25mg of prednisone, up from 5mg a year ago. Current neuro said that last year's record low temperatures were the cause of my current flair, so it's not aways the heat.

I can't speak to the twitching or eye pain. I can relate to the aggressive moods. I told friends and family that it may be a symptom of high dose pred, they didn't tell me how bad I was until I was at a lower dose and acting more like "myself".

Hope this helps,
Jim