Thanks for taking the time to reply, maybe I will try another forum, as soon as I can figure out which one

I am concerned about long term affects, but more concerned with the progression of it. And I am trying to get a sense of whether or not it's typical for it to take such an excruciatingly long time to diagnose, or even communicate with me about possibilities. I know people with ms go through this, so maybe I'll try that forum.

I've read lhermittes's sign is "benign and transient". I can tell you that for me it's neither. With the odd sensations, tingling and progressive symptoms (spreading in both intensity and location) it's just an experience that has really rattled me. And I don't rattle easily. When I was 5 yrs old I broke my arm but didn't tell anyone, I guess I didn't think it was an urgent problem. I am not a hypochondriac or even close.