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Old 12-13-2014, 09:25 PM
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pingpongman pingpongman is offline
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Join Date: Aug 2010
Location: South Carolina
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10 yr Member
pingpongman pingpongman is offline
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Join Date: Aug 2010
Location: South Carolina
Posts: 714
10 yr Member
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I have been on prednisone about 5 years. Started at 80mg now on 7 1/2 mg. I was on Imuran for 12 months it almost killed me. I lost 35 pounds. My dr said 6-12 months before it worked. I stuck out the 12 months and when I stopped Imuran for 2 wks I felt like superman but that was short lived. So my Dr was convinced it was working but it made me too sick. I'm now on Cellcept and it started to work after 6 months. I haven't had IVIG in over a year. Don't get me wrong, I'm not 100% but have learned a little about how to live with crazy disease.
What I'm saying is Imuran may work for you. But you need to give it time. As you will learn there is no magic bullet. What works for one might not work with another!! As for the Prednisone once you start it is hard to get off. The 80mg did solve my double vision.
Best Wishes,
Mike
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