Quote:
Originally Posted by AntsyPants
i do have a question. My doctor told me it could take 8 months before feeling affects of the Imuran, Ugh. When I first started this adventure the Prednisone seemed to have given me my lost strength back for a couple months before it attacked me mentally. Now off of it. I was thinking about asking to go back on it to see if I could feel better. What are thoughts on that? He doesn't feel I'm bad enough to do the IViG again, which I agree but at the same time I would like another boost. Just worried about the side effects of Pred. I feel like I was stalking my doctor by constantly emailing him with every new or worsening symptom with the response of "you have to give the medication time". In my mind it should have taken effect within days. I'm really having a hard time accepting this but trying hard to work on it.
|
Hi,
Welcome to the site. I have found out more information from all these great people. I have been diagnosed for a year now. I'm on Mestinon and time release Mestonin at night. I just completed my 6th round of IVIG. I feel much better for 6-9 weeks afterwards. I can't say anything different than anyone else except you are not alone in frustration and wondering "what's next". I was a very active physically fit person. Now I'm understanding my limitations and naps have been a must for me. At first my legs felt like lead and steps usually equalled a fall. Now I know how to negotiate steps a bit better. I have an excellent pulmonary doctor which has had to grasp my once in awhile asthma flare up to ongoing respiratory issues. I have routine breathing test output and input etc. I had to accept as a non smoker ever that my breathing test last month dropped to 32 percent efficient. The big thing I find that helps is my support system and my own self acceptance. (Work in progress) and to know triggers such as severe cold or heat. I love outdoor fires but I know it can trigger my asthma that triggers my MG. I'm a lucky person to have good doctors and people to support me on those not so good days. Positive surroundings and low stress go a long ways. Good luck!