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Old 12-15-2014, 05:19 AM
juliejayne juliejayne is offline
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Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
10 yr Member
juliejayne juliejayne is offline
Member
 
Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
10 yr Member
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Vein777
Quote:
Did you ever find a solutioni to your monocular diplopia?
Well as it happens, yes, though I am still not 100% sure that the Specialists are correct.
However I finally got to see a Neuro-ophthalmologist. She did the usual sort of eye tests, and realised that I was blinking more than is normal. That is called Blepharospasm. It is a neurological condition, cause unknown, no cure available. The blinking damages the tear film, and that causes double vision, that varies according to the amount of blinking. Naturally if you are tired and have spent a lot of time at the computer, that can worsen the effect.

Reducing the blinking reduces the double vision, and the normal treatment (of symptoms) is Botox. Totally not a good idea if you have or suspect MG.

However, after starting on Mestinon, the blinking has reduced dramatically from 80 per minute to 20 per minute and the double vision has improved, though not gone completely.

I think that it is worth pointing out here that if I had listened to the specialists I could have gone down the same route as Edwin.
It had already been suggested that I should have cataract surgery, and if I had agreed then I would have had needless surgery, which then fails to correct the real problem.

Quote:
My Neuro said 'if its monocular its not caused by MG'.
is a version of a statement that I have heard from too too many Neuros.
It is incorrect. If its monocular and you have other MG related symptoms, then it can be MG.
MG can cause Blepharospasm... blepharospasm can cause monocular DV.

Personally I still think that the actual answer is that MG can affect the ciliary muscles that move the lens of the eye.
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