Tracy, You might want to contact Dr. Harper at Mayo Clinic in Rochester, MN. He has been doing a great deal of research on it and has experience with giving it to MG patients (he's a MG expert).
You don't have to be at death's door to get it anymore! It would help to have some input from someone such as Dr. Harper to know how to get it approved more easily. It certainly couldn't hurt to call his office!
http://www.mayo.edu/research/faculty...d/bio-00078350
He has an email, too!
Annie