American TOS Association - Devoted to bringing TOS to the forefront of modern medicine....

http://www.atosa.org/main

There's a LOT here - I haven't begun to check it all out! Hoping someone will do a summary report on the laparoscopy/robotic surgery options. Lots to read in the Articles section - I'm trying to be good and watch my time, but it's hard!

I have sent an email asking for more info, specifically a list of the board members, and why funds are going for other causes instead of things like partial internship scholarships, patient assistantship, PR/public awareness campaigns, etc.

I also mentioned our little family, and inquired whether they might could use a [B]patient[B] advocacy wing to help with things such as fund-raising (t-shirts, buttons, etc.), TOS brochures (for families, PCPs), assist with local arrangements for TOS guest lecturers to speak to med students/Drs, that type of thing.

The founder comes from a medical background, has TOS herself. This site may not end up being what we are hoping for, but I think it is a step forward. At this point, all I'm after is information, which I'll pass on directly here. I do know LadyParrot (where IS LadyP??), Tam, Victoria and I have talked in the past about the need for a group that promotes TOS education, research and advocacy - well, this one seems to cover a lot of the bases fairly well, IF it could be worked out, we would only have to take on the public awareness and fundraising aspects, that type of thing, and that would not be nearly as overwhelming.

Anyway, just food for thought, really. Enjoy the site!