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Old 12-18-2014, 12:40 PM
Stang1 Stang1 is offline
Junior Member
 
Join Date: Oct 2014
Posts: 25
8 yr Member
Stang1 Stang1 is offline
Junior Member
 
Join Date: Oct 2014
Posts: 25
8 yr Member
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Did you end up doing the IVIGs? I have some kind of autoimmune disorder that is triggered by trauma. Back in 97 I broke my leg and soon after had burning sensations on my skin on upper body and after that weakness. In was diagnosed with bi lateral Bachial Plexitis. Everything returned within a year to normal except for a parylized left diaphragm. Then in 05 I had a major disc herniation which required a fusion. Soon after I developed severe weakness which was diagnosed as CIDP. Was using a walker for 3 mos. They put me on IVIG's every 3 weeks for about 5 months. It did help but it was very gradual. They were $30,000 each back then I was told. At the beginning of one of my treatments the nurse was trying to hang the large glass bottle of IVIG onto the IV tree and she lost her grip. The bottle hit the floor and broke. Very expensive oops. The worst part was when they mix that stuff it has to sit for 1-2hrs before infusion because its frothy. I pretty much spent the whole day there.
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