I've been taking LDN for six or seven years. Haven't had an attack or progression since starting it, but then I only had two attacks six years apart before starting LDN. It helped a lot with heat intolerance and my energy level picked up. I haven't seen a neuro in 8 years so no MRI's since then.

I also hate taking meds but am afraid to stop LDN. A few times, when life got busy, I fell asleep before taking it and/or just plain forgot; some symptoms started creeping in. I've never had the hug except during an attack but on those occasions that I miss taking it a lot of the time, for a few weeks or a month, I've gotten tightening around my rib cage and an increase in the tingling in my feet. Once I get back on track, that goes away.

So, it's a small pill, doesn't cost much, no side effects....I keep taking it.

C