Quote:
Originally Posted by Sadiecl
My results were negative for MG, I'm off of the Mestinon and have been reffered to a psychologist (No, i'm not setting up that appointment). And all of this information was given by the nurse over the phone. I first saw the neurologist one time 2 months ago. I was too sick to even speak,walk, or eat. I had lost 16 lbs. and was so dehydrated the skin on my hands stood up permanently when pinched up. I have not had an appointment since that day! Obviously I am seeking a second opinion, so I am looking for insight. I don't know if I have MG. (all the tests say I don't) but I have many symptoms that are in line. Are there non neurological issues that would cause facial droop, weakness, fatigue, swallowing difficulty, short of breath, ringing in ears, sensativity to sound, blurry vision, easily fatigued eyes, insomnia, Muscle spasms, sub sternal chest pain that extends to my back, etc, all of which come and go in cycles? I am dealing with my illness the best I can but there are days I am so sick I have to slide off the chair and pee in a bucket because I can't even stand up! I'm a homeschool mom with 8 kids. My youngest is 2yo. My husband is on leave from work to care for me and the kids when I am not able to do it, but if we don't find answers it is going to completely turn our lives inside out. I am feeling so abandoned  |
I really feel for you! All my test for MG are also negative. I have done three SFEMG, two of them are borderline. I respond very good to Mestinon but since all my test are negative no one seems to take it serious. Before I was put on Mestinon the doc keep telling me it was all in my head and that I need a psychologist. They still do, and say that my breathing problems etc is not real. Founding you self with a lot of symptoms and no one believes you, is very frightening and I totally understand that you are feeling abandoned. Itīs terrible. Keep fighting! Try to find another neuro. Itīs the only way, but I know itīs hard!