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Old 06-10-2007, 09:37 PM
rsd kitti's Avatar
rsd kitti rsd kitti is offline
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Join Date: Feb 2007
Location: arroyo grande calif.
Posts: 76
15 yr Member
rsd kitti rsd kitti is offline
Junior Member
rsd kitti's Avatar
 
Join Date: Feb 2007
Location: arroyo grande calif.
Posts: 76
15 yr Member
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I am so sorry for both of you. I know its the hardest thing it seems why WHY ME !!!! You are right about immmmobilizing it the area. I broke 5 bones that was June 14th will be 4 yrs and guess what I still have my cast on. I am in a wheelchair and have no bone left in the leg because the bone was unable to keep growing because I couldnt walk and still cant. I was told if they had got me in water I wouldnt be in a cast so maybe talk to your dr about getting her into the water a pool and have you also talked about oxygen combers?I was and did talk to my pain dr he said yes what ever works he didnt know iif it would help but he said its not a bad choice to try. I couldnt at this point insurance but Im working on it. I dont have the skin problem I have stiffness everywhere Im at full bodie RSD and Im 39 now and I have a tee that is losing out because he is afaird of leaving me alone I just went through a divocre whiich was very hard the stress was killing me.Its over now. Have you talked to the school about help getting her to class most colleges I went back in my mid 20s and I had a different ilness and they helped but in away talk to to learning center or its called something like that ask someone in charge of classes but they will help her get to class carry her books and take notes siting by her or if she cant be there that day and anything ealse she needs its like if she was blind schools will they have to help peple with diabilty and this is that, Im starting to have problems seeing I only see color and I get bad headacks and half my face is numb.I know im not a teen not close at all but my son iss and he doesnt have RSD but he has losed his life to by his choice but I dont want him to . I think its gret she is trying to go to school she will make it ask about the oxygen because it helps but good oxygen in you and help heal saors and skin issues and dones and other things See if you could really talk to her dr about that it might help her alot I was told I had RSD with in a few months but I was still very unluckly its moved very fast and my thinking writing mermorymy life has changed so fast so much i dont know what I should do I told my son this is probally the last summer that I will be able to do something special together because I am in bed almoat 22 hours a day Im tieder but cant sleep because of pain and my pain specialist cant do anything. So try these thing and let me know. Good luck..............Both of you......................Gentle Hugs Karen
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Gentle Hugs Karen
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