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Old 12-24-2014, 06:33 PM
vein777 vein777 is offline
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Join Date: Dec 2014
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8 yr Member
vein777 vein777 is offline
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Join Date: Dec 2014
Posts: 4
8 yr Member
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Quote:
Originally Posted by juliejayne View Post
Vein777


Well as it happens, yes, though I am still not 100% sure that the Specialists are correct.
However I finally got to see a Neuro-ophthalmologist. She did the usual sort of eye tests, and realised that I was blinking more than is normal. That is called Blepharospasm. It is a neurological condition, cause unknown, no cure available. The blinking damages the tear film, and that causes double vision, that varies according to the amount of blinking. Naturally if you are tired and have spent a lot of time at the computer, that can worsen the effect.

Reducing the blinking reduces the double vision, and the normal treatment (of symptoms) is Botox. Totally not a good idea if you have or suspect MG.

However, after starting on Mestinon, the blinking has reduced dramatically from 80 per minute to 20 per minute and the double vision has improved, though not gone completely.

I think that it is worth pointing out here that if I had listened to the specialists I could have gone down the same route as Edwin.
It had already been suggested that I should have cataract surgery, and if I had agreed then I would have had needless surgery, which then fails to correct the real problem.


is a version of a statement that I have heard from too too many Neuros.
It is incorrect. If its monocular and you have other MG related symptoms, then it can be MG.
MG can cause Blepharospasm... blepharospasm can cause monocular DV.

Personally I still think that the actual answer is that MG can affect the ciliary muscles that move the lens of the eye.
I appreciate the update. I'm still having the problem and will have see it is the blinking issue you mentioned.

I do get halos a bit at night around lights - have you had that problem. I looked at a possible connection between chromium and zinc level ratios with respect to cataracts. I say that because this relationship supposedly can cause or eliminate glycation depending on that relationship. I know I am chromium deficient.
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