Junior Member
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Join Date: Aug 2014
Posts: 37
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Junior Member
Join Date: Aug 2014
Posts: 37
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NHS neurology appointment, told it's probably migraines?! Confused
My history: whiplash in December 2013 due to hair grab and shake assault, no cognitive issues after but I had terrible headaches and nausea.
A month later my car was rear ended and I got whiplash again and cognitive symptoms which are on going.
Symptoms: Light/ sound sensitivity, word finding problems, social problems (not getting jokes, being socially inappropriate such as not saying goodbye to people and just leaving),
clumsiness, slow processing/difficulty processing complex information, sleep problems, memory problems,
difficulty filtering out external stimuli, mixing up words/using incorrect versions of words, difficulty finding my way, concentration problems.
I've been to see the NHS neurologist for my first appointment, I'm not really sure what to make of it all.
I'm being sent for Neuropsych tests but she said she thinks it's migraines because I have light and sound sensitivity.
I have no other symptoms of migraines except these, I don't get headaches (I know there are migraines where you don't get these though) except when I'm overloaded or trying to understand something complex.
She said maybe migraines have been triggered by the accident.
I looked online and by definition migraines are attacks, so you should have periods where you're fine, but I always have light/sound sensitivity, it doesn't come in bouts.
Does anyone know anything about migraines possibly being triggered by an accident like this? I've googled it and came up with nothing.
They're putting me on migraine meds to see if that helps, I'm pretty sure it won't though.
She said the MRI would've shown if there was any damage as they're pretty sensitive (yes, I know, I'm tired of doctors saying this too).
I asked her about what the other neurologist said about concussion (that I couldn't have got a concussion from whiplash) and she said well, the actual definition of concussion is that you hit your head, so technically, if you didn't hit your head, you couldn't have got a concussion.
She said several times she's confident I'll get back to normal, as in fully fine, but I don't believe this.
I said to her that it had been nearly a year and I had had no improvement at all and if I was going to get better, how come there had been no improvement at all? She said yes that is unusual and didn't say anything else.
I'm finding it very hard to trust any doctors because everyone has been wrong so far. My friend and boyfriend said I should trust her because she is a specialist and the others weren't, but I can't cope with thinking I'm going to get better.
The only thing that has enabled me to cope is getting some closure by thinking I won't fully recover, as that's an end to this. Also, if I don't fully recover then my expectations will be met.
Believing I'll get better/somewhat better is an unknown quantity, as who knows how much or how long it will take, although I do believe I'll improve to an extent over time, just nothing like how I was before.
In July a GP told me he thought it was all psychological and I believed him and got excited because I thought, well now I can get fully better!
But I didn't and I was crushed and my depression is getting worse and worse.
I've been struggling to do laundry, bathe, eat, clean, anything.
I'm just stuck in this limbo still waiting for answers and I don't know what/who to trust.
It feels like they're just going to have to eliminate stuff one by one before they say they have no idea what's wrong.
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