Hello Stellatum!

My name is John Pollman and I'm 50 years old. (soon to be 51) I was diagnosed with LOTS just about three years ago. I don't know if you do Facebook or not, but there are a couple wonderful groups over there. (one of them I created and administer)

If you haven't heard of it, I strongly suggest contacting the National Tay-Sachs and Allied Diseases foundation. *edit* They are WONDERFUL and there is a TON of support there.

Feel free to contact me any time with questions. I'm currently enrolled in two research studies for LOTS.