Junior Member
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Join Date: Dec 2014
Location: Rochester Hills, MI
Posts: 15
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Junior Member
Join Date: Dec 2014
Location: Rochester Hills, MI
Posts: 15
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Yes, LOTS is so rare that it is often misdiagnosed. I lucked out and found a very good neurologist who has been specializing in ALS for over 20 years. In that time, he's only seen two other cases of LOTS. I was his third.
I replied to that other thread with some contact info. I have a WONDERFUL support network for Tay-Sachs!
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