Hi John,
Well, your first GP certainly did a number on you! When I read your posts I had to go have a quick recce as to what LOTS is. As you say yourself, it's very rare.
What isn't so rare are the symptoms matching those of fellow Forum members, so there will always be a sympathetic shoulder of someone going through something similar.
I read that LOTS progression can be slowed by certain drugs - although side effects look rough. I trust your current Doctor has you on suitable treatment.
Any time you want to chat…
Dave.