Hi Dave!

I live about 20 miles north of Detroit, Michigan. But I am currently enrolled in two LOTS studies. One is at University of Minnesota in Minneapolis (about 750 miles away), and another one at the National Institute of Health in Bethesda, Maryland.

I've been to Minneapolis twice already, and I'm headed back there in early March. I'm making my first visit to NIH in mid April.

There is no cure for Tay-Sachs, but they are trying some drugs to hopefully slow the progression of the disease. All I can say is thank God for health insurance. I'm on several different medications. One of them I take three times a day, and it costs $304 per pill! The grand total of my medication cost over $29,000.00 per month!!!