John, thank you so much for your kindness. I don't have LOTS. I did finally get an MG diagnosis, though I seem to be in some sort of remission now.
We have a lot of people on this forum who are searching for a diagnosis. If any of them should consider LOTS, your post will be helpful.
Abby
Quote:
Originally Posted by John Pollman
Hello Stellatum!
My name is John Pollman and I'm 50 years old. (soon to be 51) I was diagnosed with LOTS just about three years ago. I don't know if you do Facebook or not, but there are a couple wonderful groups over there. (one of them I created and administer)
If you haven't heard of it, I strongly suggest contacting the National Tay-Sachs and Allied Diseases foundation. *edit* They are WONDERFUL and there is a TON of support there.
Feel free to contact me any time with questions. I'm currently enrolled in two research studies for LOTS.
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